Planning The Transition To Adulthood

When the focus of my son’s IEP became about transitioning him to adulthood, it seemed premature. He was in middle school. It seemed too soon to be working on things like vocational skill development, potential job placement, and independent living skills. But - as premature as it seemed at 14 - as he was nearing 21, it seemed like there hadn’t been enough time to prepare him - or me.

My son is 23 now. Looking back, here are some things I learned that may help in your child’s transition process.

1. Think and pray about your child’s future.

   • What are your dreams for your child’s next chapter? What interests do they have that you want to build on?

   • Where will they live? Where will they find community as an adult?

   • Will they work? Go to college? What skills does he/she need to develop or strengthen?

   • How will siblings be involved in their lives?

   • What kind of support will they need?

2. As usual, do your homework.

   • What is your school district’s process for transitioning students to adulthood?

   • What is the timeline for making the transition so that your child is set up for success?

   • What resources do your district and local agencies provide to help in the transition?

   • What resources will you need to find on your own? In my case, I had to find a transition coordinator for my son because the school district didn’t willingly provide that resource to children with profound special needs.

   • How is funding determined? For my son, the NJCAT assessment was used to determine government funding levels. Based on responses to questions about my son’s needs, level of independence in different settings, communication skills, behavioral issues, medical issues, etc., a funding tier was assigned.

3. Be prepared to do your own research.

   • What post-school options exist in your area (i.e. day habilitation, college/trade school, employment, group homes, community based supports)?

   • Which are best suited to your child’s needs and abilities?

   • Prepare to visit a lot of programs; and, if possible, take your child’s teacher and case manager with you. Don’t rely on brochures for this. Nothing is as good as it seems on paper.

   • You’ll also need to research and interview support coordination agencies to replace your child’s case manager. Speak with other parents about their experiences.

4. Review medical needs.

   • Have you found adult specialists to replace pediatric providers?

   • If you haven’t already, now is the time to organize your child’s medical history and current medical needs: conditions, doctors, medications, etc.

5. What kind of changes do you need to start making at home?

   • How can you help your child to become more independent? How can you help generalize skills from school to home? In what ways can you pull back to give your child a chance to grow his/her skills?

   • Will you need additional support at home?

There’s a lot to think about and do. It can feel intimidating, but creating a plan with your child’s teacher and case manager can make the process much smoother.